Bricklayer Tony Waite’s charity cycle trip to Paris will raise funds for Prader-Willi Syndrome

A bricklayer who works for housing group Thirteen is off on a 300-mile cycling trip for charity next month.

Tony Waite, who has worked for the housing group for 17 years, plans to journey from London to Paris to raise money for Prader-Willi Syndrome (PWS) and the Butterwick & Teesside Hospice.

His daughter, now 21, was diagnosed with PWS when she was just a couple of weeks old. The condition is rare and complicated. Caused by a defect on chromosome number 15, it affects just one in every 15,000 children born in the UK and is characterised by learning difficulties, low pain threshold and growth abnormalities.

“I’ve done the Coast to Coast recently, but this is the longest bike ride I’ll have ever done,” Waite said. “I’ve done a lot of fundraising in the past, climbed Mount Kilimanjaro and completed the trek to Machu Picchu. It’s all been funded by myself with every penny going to really worthwhile causes.

“I’m doing this because I enjoy it and it’s a great way to raise money for some really worthwhile charities. PWS was something I’d never heard of until my daughter was born and now it will always be a part of our life and the Butterwick & Teesside Hospice are two local charities who deserve a lot of credit and support for everything they do for local people.

“We want to raise as much as possible, so any donations will be really appreciated.”

The Prader-Willi Syndrome Association UK (PWSA UK) provides information and support for people whose lives are affected by the condition. The PWSA helpline can be contacted on 01332 365676.

Waite and his group will set off on their eight-day journey on 2 September. Donations can be made at:



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